CJD Watch Archives, the early days
This is an archive of CJD Watch starting from about 1998, early days…terry
CJD Watch
AWARDED WEBSITE OF THE WEEK
BY THE: AMERICAN ASSOCIATION of BLOOD BANKS
AABB WEEKLY REPORT - December 11, 1998
ESPANOL! LÉALO!
SWEDISH! ENTER!
This site will be tracking Creutzfeldt - Jakob Disease (CJD) victims in the geographical areas in which they lived and died. We, both the general public and medical professionals/researchers, need to know how widespread CJD is and where there are clusters. Therefore, we hope to include all CJD cases worldwide. To do this we are asking the general public and the families of the victims to help us in this project. Our ultimate goals are for strict mandatory reporting of CJD victims in all areas and a cure for the disease Please help by sharing information about your family member, friend, or acquaintance who had or has this hideous disease. Thank you so very much.
Email :
INTERNATIONAL COORDINATORS :
Terry or Debbie or Carmie
Visit CJD Watch's Sister Site, The Many Faces of CJD.
This website will provide you with additional information and the
personal stories of the families who have suffered tragic loss due to CJD.
Click Here
CREUTZFELDT-JAKOB DISEASE FACT SHEETS :
Click on "Go Get it" to select the language's available below.
Creutzfeldt-Jakob Disease
Database
Click on the eye to view
(A Work In Progress)The great humanitarian Albert Schweitzer said, "The purpose of life is to serve and show compassion and the will to help others."
Submit To CJD Victims Memorial
Submit Victims Information In ENGLISH With This Form:
NOUVEAU!! Remplissez le questionnaire fran?ais ci-dessous
Rellene este cuestionario con datos de las victimas en ESPANOL
Submit Victims Information In SWEDISH With This Form:
United States Map Index
State - County Maps
Click on the menu for the list of State maps and Victims Profiles:
Not all Map links work yet,
We are working hard to reconstruct them.
Thank you for your patience.
National Coordinators:
Canadian Coordinator: Paula Grau
Australian Coordinator: Lynette Dumble
United States Coordinators: Contacts listed below:
Carmie Genskay
Terry Singeltary
Contact en France: Annabelle Violette Obry
Contact en: Espanol: Alicia Levine
International Index
Click on the menu for list of Countries, more coming soon!
Again we thank you for your patience,
while we reconstruct these maps.
E-mail any Maps to Kgen263875@aol.com
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Last Updated 08/08/02
CREUTZFELDT-JAKOB DISEASE FACT SHEET - 1/1999
BY DEBORAH ONEY, MASTER OF SOCIAL WORK
CO-FOUNDER, BLOOD RECALL/WITHDRAWAL - CJD
Creutzfeldt-Jakob Disease (CJD) is an infectious rapidly progressive fatal brain-deteriorating disease for which there is no treatment or cure. Most scientists believe CJD is caused by a prion, which is a protein. People in the United States and throughout the world get CJD. One strain nvCJD is thought to be related to bovine spongiform encephalopathy (i.e. Mad Cow Disease) in the United Kingdom. To date no nvCJD cases have been observed in the United States. Normal sterilization procedures do not inactivate the CJD infectious agent. The incubation period varies greatly with symptoms emerging in known cases in 15 months to 30 years after exposure. There is no preclinical test to determine if infection took place after a possible exposure.
WHO GETS CJD AND HOW?
CJD most frequently appears in people ages 50-75. However, there are victims in their 40s, 30s and even 20s. The officially stated mortality rate of about one person per million per year appears to be an understatement since CJD often escapes detection. In a Yale University study 13% of clinically-diagnosed Alzheimer patients were found on autopsy to have CJD. There are three forms of CJD: familial (about 5-10% of cases), sporadic (cause unknown, about 90-95%) and iatrogenic (caused by a medical procedure such as contaminated cadaver-derived growth hormones, dura mater implants, and cornea transplants, less than 1%). Athletes who use cadaver-derived growth hormones are at risk for CJD.
People receive blood products in transfusions, vaccines, diagnostic tests and InVitro Fertilization cultures. The Centers for Disease Control is currently conducting a study to determine if CJD is transmitted to humans by blood. The infectious agent has been found in blood, but there have been no documented cases of blood transmission in humans. As a precaution blood relatives of CJD victims and people at risk for iatrogenic or familial CJD should not donate blood.
Blood product withdrawals due to theoretical CJD risk have resulted in many people receiving blood product withdrawal notifications. These notifications can cause a great deal of anxiety for recipients.
WHAT ARE THE SYMPTOMS OF CJD AND HOW IS IT DIAGNOSED?
Classical CJD symptoms are a rapidly progressive presenile dementia; involuntary, irregular jerking movements; and progressive motor dysfunction. Early symptoms can include failing memory, behavior changes, visual disturbances, and lack of coordination. The duration of CJD from the onset of symptoms to death is usually less than a year. 14-3-3 spinal fluid tests and brain biopsies are tests used to support a clinical diagnosis of CJD in symptomatic patients. However, an autopsy is the only definitive way of diagnosing CJD.
RESOURCES USED IN WRITING THE FACT SHEET
Brainum, Jerry. Growth Hormone: Certain Forms Could Be Deadly: GH Derived from Cadavers Could Incubate Lethal Brain Cancer - And It's Still Available in Europe! Muscular Development. September, 1998; 146.
The Centers for Disease Control and Prevention (CDC) Creutzfeldt-Jakob Disease Program: A Congressional Mandate. This is available at this url: http://members.aol.com/larmstr853/cjdvoice/cdcprog.htm Click Here
Dealler, Dr. Steven, "Terms used by the scientists and explained as simply as possible." This is available at: http://www.airtime.co.uk/bse/defb.htm Click Here
The Food and Drug Administration Center for Biologics Evaluation and Research "Revised Precautionary Measures to Reduce the Possible Risk of Transmission of Creutzfeldt-Jakob Disease (CJD) by Blood and Blood Products - December 11, 1996." This is available at: http://www.fda.gov/cber/bldmem/mem121196.txt Click Here
Hill, Andrew F.; Melanie Desbruslais; Susan Joiner, Katie C. L. Sidle, Ian Gowland; John Collnge; Lawrence J. Doey; and Peter Lantos. "The same prion strain causes vCJD and BSE". Nature.389 (October 2, 1997). 448 - 450.
Hsich, Gary; Kimbra Kenney; Clarence J. Gibbs, Jr.; Kelvin H. Lee; Michael G. Harrington. The New England Journal of Medicine -- September 26, 1996 -- Volume 335, Number 13. "The 14-3-3 Brain Protein in Cerebrospinal Fluid as a Marker for Transmissible Spongiform Encephalopathies."
Manuelidis, Elias E. and Laura Manuelidis, "Suggested Links between Different Types of Dementias: Creutzfeldt-Jakob Disease, Alzheimer Disease, and Retroviral CNS Infections" Alzheimer Disease and Associated Disorders_ 3 (1989): 100-109
National Institute of Neurological Disorders and Stroke. "Creutzfeldt-Jakob Disease: Fact Sheet". This is available at this url: http://www.ninds.nih.gov/patients/disorder/creutjab/cjd.htm Click Here
National Institute of Neurological Disorders and Stroke, "Creutzfeldt-Jakob Disease for Health Care Workers and Morticians", July, 1997. This is available at this url: http://members.aol.com/larmstr853/cjdvoice/ninds.htm Click Here
Ricketts, Maura N., Neil R. Cashman, Elizabeth E. Stratton, Susie ElSaadany, Laboratory Centre for Disease Control, Health Canada, Ottawa, Ontario, Canada; Montreal Neurological Institute, Montreal, Canada "Is Creutzfeldt-Jakob Disease Transmitted in Blood?" 05/14/97 Emerging Infectious Diseases National Center for Infectious Diseases Centers for Disease Control and Prevention Atlanta, GA. This is available at this url: http://www.cyber-dyne.com/~tom/blood_cjd.html Click Here
Back to CJD Watch!
Contact update coordinator to make additions and corrections.
454 Submissions Listed As Of 19 November, 2002.
See also: CJD Watch, Many Faces of CJD, CJD Voice, CJD Blood Recalls,
CJD Foundation, Mad Cow Disease, Mad Cow Disease and CJD, BSE/CJD Human-Animal TSE's board (updated), Prion Data Organization(UK)
The Many Faces of CJD
CJD Watch Message Board
different messages
CJD Watch Fact Sheet
BY DEBORAH ONEY, MASTER OF SOCIAL WORK
CO-FOUNDER, BLOOD RECALL/WITHDRAWAL - CJD
People receive blood products in transfusions, vaccines, diagnostic tests and InVitro Fertilization cultures. The Centers for Disease Control is currently conducting a study to determine if CJD is transmitted to humans by blood. The infectious agent has been found in blood, but there have been no documented cases of blood transmission in humans. As a precaution blood relatives of CJD victims and people at risk for iatrogenic or familial CJD should not donate blood.
Blood product withdrawals due to theoretical CJD risk have resulted in many people receiving blood product withdrawal notifications. These notifications can cause a great deal of anxiety for recipients.
The Centers for Disease Control and Prevention (CDC) Creutzfeldt-Jakob Disease Program: A Congressional Mandate. This is available at this url: http://members.aol.com/larmstr853/cjdvoice/cdcprog.htm Click Here
Dealler, Dr. Steven, "Terms used by the scientists and explained as simply as possible." This is available at: http://www.airtime.co.uk/bse/defb.htm Click Here
The Food and Drug Administration Center for Biologics Evaluation and Research "Revised Precautionary Measures to Reduce the Possible Risk of Transmission of Creutzfeldt-Jakob Disease (CJD) by Blood and Blood Products - December 11, 1996." This is available at: http://www.fda.gov/cber/bldmem/mem121196.txt Click Here
Hill, Andrew F.; Melanie Desbruslais; Susan Joiner, Katie C. L. Sidle, Ian Gowland; John Collnge; Lawrence J. Doey; and Peter Lantos. "The same prion strain causes vCJD and BSE". Nature.389 (October 2, 1997). 448 - 450.
Hsich, Gary; Kimbra Kenney; Clarence J. Gibbs, Jr.; Kelvin H. Lee; Michael G. Harrington. The New England Journal of Medicine -- September 26, 1996 -- Volume 335, Number 13. "The 14-3-3 Brain Protein in Cerebrospinal Fluid as a Marker for Transmissible Spongiform Encephalopathies."
Manuelidis, Elias E. and Laura Manuelidis, "Suggested Links between Different Types of Dementias: Creutzfeldt-Jakob Disease, Alzheimer Disease, and Retroviral CNS Infections" Alzheimer Disease and Associated Disorders_ 3 (1989): 100-109
National Institute of Neurological Disorders and Stroke. "Creutzfeldt-Jakob Disease: Fact Sheet". This is available at this url: http://www.ninds.nih.gov/patients/disorder/creutjab/cjd.htm Click Here
National Institute of Neurological Disorders and Stroke, "Creutzfeldt-Jakob Disease for Health Care Workers and Morticians", July, 1997. This is available at this url: http://members.aol.com/larmstr853/cjdvoice/ninds.htm Click Here
Ricketts, Maura N., Neil R. Cashman, Elizabeth E. Stratton, Susie ElSaadany, Laboratory Centre for Disease Control, Health Canada, Ottawa, Ontario, Canada; Montreal Neurological Institute, Montreal, Canada "Is Creutzfeldt-Jakob Disease Transmitted in Blood?" 05/14/97 Emerging Infectious Diseases National Center for Infectious Diseases Centers for Disease Control and Prevention Atlanta, GA. This is available at this url: http://www.cyber-dyne.com/~tom/blood_cjd.html Click Here
Family & CJD Victims Stories:
Please share your loved ones information. We now are building a database, the purpose of which is to learn how many victims of CJD in the US. Is it truly one in a million? We believe it is more than one in a million. And the age of the victim now appears to be much younger.
Email Carmie at:
Kgen263875@aol.com for a submission form
WHILE WE ARE UNDER CONSTRUCTION.
CJD Watch Database
CJD WATCH DATABASE
CJD WATCH DATABASE VISITOR COUNTERContact update coordinator to make additions and corrections.
454 Submissions Listed As Of 19 November, 2002.
See also: CJD Watch, Many Faces of CJD, CJD Voice, CJD Blood Recalls,
CJD Foundation, Mad Cow Disease, Mad Cow Disease and CJD, BSE/CJD Human-Animal TSE's board (updated), Prion Data Organization(UK)
Legend for columns: Age at death Male or female Date of death Duration of illness (months) County of death State of death Occupation Diagnostic methods,risks,type CJD CJD Watch identification number |
| Age | Sex | Death | Month | County | State | Occupation | Diagnosis and Comment | ID# | |
| - | F | Jun 1998 | - | Southern | ME | - | Neurologist | 60 | |
| - | M | 1996 | - | Castro | TX | - | Neurologist | 117 | |
| - | M | Aug 1999 | 2 | - | - | - | Neurologists Dx | 299 | |
| - | M | 1997 | - | Lubbock | TX | - | Neurologist | 135 | |
| - | F | Jul 1999 | - | - | MD | - | - | 270 | |
| - | F | Dec 1996 | - | Suffolk | LI | - | Neurologist | 46 | |
| - | F | Aug 1999 | - | Butte | CA | - | SF Autopsy | 262 | |
| - | F | Aug 1999 | 10 | - | CA | Foster Mother | - | 286 | |
| - | F | 1997 | - | Winston | AL | - | Neurologist | 9 | |
| - | M | Aug 1998 | - | Jefferson | AL | - | Neurologist | 3 | |
| - | F | May 1993 | - | Adams | PA | Office Manager | Autopsy | 323 | |
| - | M | Oct 1995 | - | Harris | TX | Plant Manager | Tests indicate CJD | 335 | |
| - | F | Aug 1999 | 1.5 | Saginaw | MI | Housewife | Autopsy | 338 | |
| - | F | Jan 2000 | - | Galveston | TX | - | Clinically Confirmed as CJD | 340 | |
| - | F | Jun 1997 | 1 | Syracuse | NY | - | Pending | 374 | |
| - | F | Oct 2000 | 3 | - | - | - | NIH/14-3-3 | 387 | |
| - | F | Oct 2000 | 2 | - | CA | - | - | 389 | |
| - | F | Dec 1999 | - | - | - | - | - | 412 | |
| 18 | M | Oct 1978 | 26 | Onondaga | NY | Student | Autopsy | 277 | |
| 19 | M | Feb 1998 | 3 | Quebec | Canada | Student | 14-3-3/Autopsy | 244 | |
| 24 | M | Aug 2000 | - | West Sussex | England | - | Confirmed nvCJD | 410 | |
| 26 | M | Sep 2001 | 4 | Macomb | MI | Electrical Designer | Brain Biopsy - MM2 | 426 | |
| 28 | M | Apr 2000 | - | Ottawa | OK | Hauled Fertilizer | EKG | 85 | |
| 28 | M | Pending | - | St. Clair | MI | USN-6Yr-Power Plant Opr. | Brain Biopsy | 425 | |
| 30 | M | Mar 1999 | 12 | Davis | UT | - | Neurologist | 165 | |
| 30 | M | Aug 1998 | 24 | NSW | Australia | Heavy Machinery Operator | Genetic Testing | 432 | |
| 32 | M | Jun 1999 | 3.5 | Queensland | Australia | Trolley Supervisor | EEG/Spinal Tap/Autopsy | 228 | |
| 32 | F | Oct 1999 | 24 | San Diego | CA | Medical Student | Biopsy | 292 | |
| 35 | M | Dec 1998 | 24 | Jasper | MO | Contractor | 14-3-3 +;autopsy pending | 186 | |
| 36 | M | Apr 1998 | 4 | Wichita | TX | - | 2 Neurologists | 142 | |
| 36 | F | Pending | 6 | Polk | FL | - | Biopsy | 297 | |
| 36 | M | - | - | - | NY | Self Employed | Biopsy | 406 | |
| 37 | M | Nov 1995 | 23 | Trumbull | OH | Steel Worker | Brain biopsy | 261 | |
| 37 | M | Aug 1993 | 18 | Johnson | MO | Farm Worker/Mechanic | Brain biopsy | 352 | |
| 37 | M | May 1997 | - | Saskatchewan | Canada | R.R Engineer/Firechief/EMT | Autopsy & 14-3-3 | 444 | |
| 38 | F | Jun 1998 | - | Nassau | LI | - | Neurologist | 51 | |
| 38 | M | Oct 1990 | 8 | Pinellas | FL | Railroad Electrician | Biopsy | 419 | |
| 39 | F | Sep 1998 | - | Adams | CO | - | Neurologist | 22 | |
| 39 | M | Feb 1999 | 9 | Churchill | NV | Rancher/Cowboy | Neurologist | 72 | |
| 39 | F | Pending | 19 | - | - | Social Worker | Pending | 319 | |
| 40 | M | Apr 1998 | 13 | King | WA | Building Contractor | Autopsy | 151 | |
| 40 | F | Mar 1996 | 3 | Clinton | MI | Homemaker | EEG - Neurologist | 267 | |
| 41 | M | Jan 1996 | 24 | Tarrant | TX | Judge | Neurologists | 139 | |
| 41 | M | Feb 1996 | 24 | Anoka | MN | Computer Engineer | Neurologist | 66 | |
| 41 | F | Jan 1999 | - | Suffolk | NY | - | Neurologists | 166 | |
| 41 | F | Jan 1998 | 14 | Wake | NC | Telephone Linewoman | Brain Autopsy | 351 | |
| 41 | M | Jun 1985 | 48 | NSW | Australia | Butcher | Autopsy | 433 | |
| 42 | M | Jul 1998 | 12 | King | WA | Businessman | - | 238 | |
| 42 | F | Dec 1968 | 12 | Buchanan | MO | Homemaker | Neurologist | 69 | |
| 42 | F | Sep 2002 | 5 | Cuyahoga | OH | Housewife | 14-3-3 | 451 | |
| 43 | M | Aug 1979 | 18 | Harris | TX | Manager/Firm | Autopsy | 130 | |
| 43 | M | Dec 1981 | 17 | Ford | IL | Civil Servant | Autopsy | 180 | |
| 43 | M | Jul 1998 | 4 | King | WA | - | Biopsy | 159 | |
| 43 | F | Jan 1999 | 12 | Roanoke | VA | Nurse | Biopsy,sporadic | 2 | |
| 44 | F | May 1999 | 1 | Eugene | OR | Anthropologist | Neurologist Dx | 215 | |
| 44 | F | Aug 1998 | 12 | Davis | UT | Dental Assistant | Neurologist | 146 | |
| 44 | F | Mar 1996 | 1 | Philedelphia | PA | Worker | Neurologist | 110 | |
| 45 | M | Jul 1996 | 7 | Albany | NY | Maint.Mechanic | Neurologist | 80 | |
| 45 | F | Jul 1998 | 12 | Middlesex | England | Assistant Manager | Autopsy/14-3-3 | 325 | |
| 45 | M | Dec 2000 | Company Director | Autopsy/14-3-3 | 411 | ||||
| 46 | F | Dec 1983 | 18 | Stephenson | IL | Homemaker | Autopsy | 209 | |
| 46 | M | Jan 1996 | 60 | Providence | RI | Carpenter | Neurologist - | 113 | |
| 46 | F | Jun 1999 | - | Autopsy | 405 | ||||
| 46 | M | Feb 1997 | 17 | Horicon | WI | Insurance Sales | Autopsy | 414 | |
| 47 | M | Mar 1997 | 3 | Titus | TX | Fire fighter | Neurologists | 140 | |
| 47 | M | Jun 1994 | 8 | Hunterdon | NJ | Attorney | Autopsy | 236 | |
| 47 | M | Feb 1997 | 18 | Dodge | WI | - | Neurologist Dx | 156 | |
| 47 | F | Jan 1997 | 9 | Brazoria | TX | - | Biopsy | 284 | |
| 47 | F | Pending | - | Carlsbad | NM | Teacher | 14-3-3 | 442 | |
| 48 | M | Feb 1998 | 8 | Los Angeles | CA | Business/Publisher | Neurologist | 14 | |
| 48 | F | Jan 1998 | 24 | N.Smithfield | RI | Homemaker | Neurologist | 112 | |
| 48 | M | May 1997 | 3 | Cuyahoga | OH | Management | Neurologist | 94 | |
| 48 | F | Nov 1997 | 24 | Portage | OH | Homemaker | Neurologist | 99 | |
| 48 | F | Jul 1989 | 9 | LaSalle Par | LA | Homemaker | - | 252 | |
| 48 | M | Sep 1975 | 2 | Fayette | IL | Power Co.Employee | Neurologist | 33 | |
| 49 | M | Aug 1987 | 4 | Spokane | WA | Grounds Keeper,golf | Neurologist | 153 | |
| 49 | M | Nov 1991 | 7 | Blaine | OK | Postal Worker | Neurologist | 100 | |
| 49 | F | May 1998 | 6 | New York | NY | - | Neurologist | 83 | |
| 49 | M | 1961 | 36 | Mercer | NJ | Teacher | Autopsy | 74 | |
| 49 | F | Jun 1998 | 11 | San Francisco | CA | Engineer | Neurologist | 18 | |
| 49 | F | Oct 1999 | - | Ontario | CA | - | Dx | 216 | |
| 50 | M | Aug 1997 | 2 | Kent | England | Butcher/Builder | Autopsy | 294 | |
| 50 | F | Sep 1973 | 12 | Jefferson Par | LA | Homemaker | Biopsy | 54 | |
| 50 | M | Oct 1996 | 5 | Jefferson Par | LA | Photography Bus.Owner | Autopsy | 356 | |
| 51 | M | Jul 1989 | 8 | DeKalb | GA | Electrical Contractor | EEG/biopsy | 162 | |
| 51 | F | Mar 1997 | - | Dallas | TX | Doctor | Autopsy | 118 | |
| 51 | M | Jan 1987 | 7 | Ocean City | NJ | Farmer | Biopsy | 213 | |
| 51 | M | Apr 1994 | 2 | Monmouth | NJ | Financial Manager | Neurologist | 76 | |
| 51 | F | Dec 1998 | 3 | Muhlenburg | KY | Teacher Ret./Farmer | U of FL Dx | 44 | |
| 51 | M | Aug 1981 | 6 | Burlington | NJ | Minister | Autopsy | 73 | |
| 51 | M | Dec 1986 | 9 | Orange | CA | Office Manager | Biopsy | 324 | |
| 51 | F | Jun 2001 | 12 | Suffolk | NY | Banker | 14-3-3 | 415 | |
| 52 | M | Feb 1999 | 2 | King | WA | Projectionist/Mechanic | 14-3-3 | 237 | |
| 52 | M | Nov 1994 | 7 | Lackawnna | PA | Greenhouse Owner | Autopsy | 108 | |
| 52 | M | Aug 1982 | 36 | Westchester | NY | - | Autopsy,sporadic | 87 | |
| 52 | M | 1995 | - | Somerset | ME | - | Neurologist | 59 | |
| 52 | M | Sep 1982 | 5 | Milwaukee | WI | Security Guard | Neurologists Dx | 288 | |
| 52 | M | May 1999 | 12 | Gwinnett | GA | - | Biopsy | 176 | |
| 52 | F | Apr 1998 | - | Hillsboro | NC | City Atty's Secretary | - | 341 | |
| 52 | M | Jun 1995 | 2.5 | Polk | FL | Unemployed | Autopsy | 372 | |
| 52 | M | Jul 1999 | 2 | Ada | ID | Business Manager | EEG/Spinal Test | 403 | |
| 52 | F | - | 1 | - | NY | Hotel Laundry Supervisor | - | 429 | |
| 53 | F | Dec 1998 | 5 | Doniphan | KS | Health Care Worker | Autopsy | 202 | |
| 53 | M | May 1997 | 1 | Hopkins | TX | Dairy Truck Driver | Neurologist | 133 | |
| 53 | M | Jun 1998 | 3 | Fresno | CA | Architect | Biopsy/UCSF | 214 | |
| 53 | F | Apr 1995 | 12 | Montgomery | IN | Press Operator | St.Vincent Hospital/Dx | 38 | |
| 53 | M | Mar 1968 | 12 | Cook | IL | Office Manager | Autopsy,familial | 32 | |
| 53 | F | Jun 1997 | 3 | Pinellas | FL | Electronics Co. | Spinal fluid/14-3-3 | 219 | |
| 53 | M | Sep 1990 | 7 | Cuyahoga | OH | CPA | Autopsy/NIH | 95 | |
| 53 | F | Dec 1999 | 4 | - | KS | - | Mayo Clinic Dx/Autopsy | 369 | |
| 53 | M | Oct 2000 | 18 | Travis | TX | Installer for Lucent Tech. | Biopsy | 397 | |
| 53 | M | Mar 2000 | 8 | Harris | TX | Air Traffic Controller | Bood Test | 418 | |
| 54 | M | 1997 | 36 | Hamilton | OH | - | Neurologist | 96 | |
| 54 | F | Mar 1999 | 4 | Middlesex | MA | Homemaker | 14-3-3 & brain Dx + | 199 | |
| 54 | M | Nov 1992 | 8 | Winston | AL | US Forestry | Neurologist | 8 | |
| 54 | F | Jun 1999 | 2 | - | RI | Insurance Underwriter | 14-3-3/Neurologists Dx | 290 | |
| 55 | M | Jul 1999 | 2 | Blaine | MN | Chemical Engineer | Neurologist Dx | 269 | |
| 55 | F | May 1999 | 3 | Pickens | SC | Homemaker/VP Const. | Biopsy | 240 | |
| 55 | F | Jan 1998 | - | Montgomery | AL | - | Neurologist | 5 | |
| 55 | F | Dec 1997 | 3 | Gwinnett | GA | Sales Representative | Neurologist | 160 | |
| 55 | M | Jul 1983 | 4 | Orleans Par | LA | Professor/Pastor | Biopsy,sporadic | 310 | |
| 56 | M | Nov 1999 | 1 | Ohio | WVA | Sales Representative | Brain biopsy | 307 | |
| 56 | M | Apr 1989 | 2 | Kennebec | ME | Truck Driver | Neurologist Dx | 256 | |
| 56 | M | Oct 1991 | 4 | Linn | IA | Aerospace QC | Brain biopsy | 42 | |
| 56 | F | Apr 1998 | 10 | Douglas | GA | X-Ray Technologist | Biopsy Nov 1997 | 280 | |
| 56 | M | Jan 1998 | 2 | - | NE | Self employed | Autopsy | 184 | |
| 56 | F | Jun 1997 | 8 | Henderson | TX | School Teacher | Neurologists | 131 | |
| 56 | F | Jul 1973 | 3 | - | VA | Homemaker | Pending | 344 | |
| 56 | M | Pending | 6 | Milwaukee | WI | Factory Worker | 14-3-3 | 368 | |
| 56 | M | Sep 1999 | 1 | Suffolk | NY | Retired Teamster | 14-3-3 | 413 | |
| 57 | _ | Feb 1998 | - | Montgomery | AL | - | Neurologist | 6 | |
| 57 | M | Jun 1997 | 6 | Suffolk | LI | Service Manager | Neurologist | 48 | |
| 57 | F | Jun 1979 | 6 | New York | NY | Clerk/Homemaker | Autopsy | 301 | |
| 57 | M | May 1996 | - | Monroe | WV | Army/Cattle | Neurologist Dx | 155 | |
| 57 | M | Sep 1982 | 3 | Suffolk | NY | Administrator | Autopsy | 264 | |
| 57 | F | Mar 1998 | 1 | Salt Lake | UT | Payroll Clerk | Neurologist | 147 | |
| 57 | F | Dec | Secretary-School | Loma Linda Hosp/Dx | 104 | ||||
| 57 | M | Nov 2000 | - | Cleveland | OH | Capt. Charter Fishing Boat | Pending | 376 | |
| 57 | M | Dec 1997 | - | Ada | ID | Ret.Military/Manager | 14-3-3/EEG/Autopsy | 388 | |
| 58 | M | Mar 1999 | 9 | Allegheny | PA | Tour Bus Driver | Autopsy | 274 | |
| 58 | F | Apr 1996 | 1 | San Joaquin | CA | Homemaker | Autopsy | 191 | |
| 58 | F | Jan 1998 | 5 | Lamb | TX | Office Employee | Neurologist | 134 | |
| 58 | M | Pending | 12 | Dekalb | AL | Auto Repair/Parts | Biopsy | 231 | |
| 58 | F | Pending | 3 | St.Landry Par | LA | Homemaker | Neurologist,awaiting 14-3-3 | 309 | |
| 58 | F | Jul 1997 | 2 | Upshur | TX | - | Neurologist | 141 | |
| 58 | M | Jul 1998 | - | St.Albans | ME | - | Neurologist | 58 | |
| 58 | M | Mar 1997 | 3 | Westchester | NY | Contractor | Brain biopsy | 253 | |
| 58 | M | Jun 2001 | 6 | - | NM | Controller | Autopsy | 343 | |
| 58 | F | Jun 2001 | 5 | Ida | IA | Secretary | Mayo Clinic Dx | 347 | |
| 58 | M | Sep 1997 | 3.5 | Suffolk | NY | Biology Professor | Autopsy | 354 | |
| 59 | M | Nov 1996 | 3 | Ontario | Canada | - | 14-3-3/Autopsy | 304 | |
| 59 | F | Pending | 6 | Mendocino | CA | Assistant Teacher | EEG/Blood/MRI/14-3-3 - | 249 | |
| 59 | F | Pending | - | St.Landry Par | LA | - | Pending | 291 | |
| 59 | F | Pending | 36 | Ocean | NJ | - | Neurologist | 77 | |
| 59 | M | Jan 1997 | 10 | Westchester | NY | School Teacher | Biopsy | 266 | |
| 59 | F | Sep 1981 | 9 | King | WA | Homemaker | Neurologist | 152 | |
| 59 | M | Jun 1997 | 1 | Northampton | PA | Construction | Neurologist Dx | 217 | |
| 59 | M | Nov 1994 | 3 | Simcoe | Canada | Welder/Engineer/Retired | Neurologist | 239 | |
| 59 | M | Dec 1998 | 8 | Lancaster | NE | Minister | NIH/Spinal fluid | 71 | |
| 59 | F | Oct 1999 | 3 | Minneapolis | MN | Property Manager | Neurologist | 313 | |
| 59 | F | Dec 1996 | 6 | Ontario | Canada | Occupational Therapist | Biopsy | 314 | |
| 59 | F | May 1995 | 5 | Macomb | MI | Hosp.Laundry Worker | Autopsy | 321 | |
| 59 | M | Pending | 8 | Payne | OK | John Deere Salesman | Blood Work, Biopsy | 348 | |
| 59 | M | Sep 1998 | 4 | Suffolk | NY | Office Worker/Painter | Autopsy | 377 | |
| 59 | M | Jan 1998 | 1.5 | Allegan | MI | Farmer | EKG | 434 | |
| 59 | M | Mar 1990 | 4 | - | MA | Management | Autopsy | 437 | |
| 60 | F | Aug 1996 | 6 | Whatcom | WA | Homemaker | Neurologist - | 154 | |
| 60 | F | Mar 1995 | 6 | Middlesex | MA | Homemaker | Biopsy | 65 | |
| 60 | F | Aug 1998 | 11 | Brazoria | TX | Florist | Biopsy | 115 | |
| 60 | M | Jun 1998 | 3 | Elliott | ME | Marine Mechanic | 14-3-3/Autopsy Pending | 190 | |
| 60 | M | Nov 1996 | 18 | Winn | LA | Salesman | Neurologist | 55 | |
| 60 | F | Jul 1990 | 8+ | Nassau | LI | Homemaker | Neurologist | 50 | |
| 60 | F | Jan 1982 | 4 | - | MO | Bkkeepr,Spouse,Butcher | Biopsy | 306 | |
| 60 | M | Jul 1999 | 4 | Providence | RI | Textile Worker | Biopsy | 254 | |
| 60 | M | 1993 | - | Waukesha | WI | Dairy Farmer | Dx in Hospital | 158 | |
| 60 | F | Mar 1987 | 9 | Winnebago | IL | Nurse/Rehab Specialist | Neurologist | 35 | |
| 60 | F | Aug 1996 | 3 | Skagit | WA | Homemaker | Biopsy | 200 | |
| 60 | M | Jun 1999 | 5.5 | - | MI | - | Neurologist Dx | 255 | |
| 60 | M | Jul 1999 | 1 | Licking | OH | Retired | Biopsy | 243 | |
| 60 | M | Sep 1988 | 3 | Richmond | NY | Maintenance Mechanic | Autopsy | 327 | |
| 60 | M | Aug 1999 | 42 | Clark | NV | Porter | - | 328 | |
| 60 | M | Jul 1994 | 3 | - | NY | Machinist | Biopsy | 350 | |
| 60 | F | Apr 1997 | 4 | WA | Australia | - | - | 362 | |
| 60 | F | - | - | Harris | TX | Protective Svcs Supvsr | 14-3-3 | 365 | |
| 60 | M | Apr 1990 | 15 | King | WA | Mechanic | - | 385 | |
| 60 | F | Jan 2000 | 42 | AnneArundel | MD | Homemaker | Biopsy | 398 | |
| 60 | M | May 1999 | 6 | Creek | OK | Steel Shop Worker | Mayo Clinic Dx | 449 | |
| 61 | F | Apr 1998 | - | Holbork | LI | - | Neurologist | 167 | |
| 61 | M | Dec 1995 | 9 | Los Angeles | CA | Businessman | Neurologist | 12 | |
| 61 | F | Jan 1998 | - | Gregg | TX | - | Neurologist | 124 | |
| 61 | F | 1981 | 3 | - | LA | Registered Nurse | Biopsy | 302 | |
| 61 | M | Jan | Computer Analyst | Neurologist | 25 | ||||
| 61 | F | Apr 1998 | - | Kay | OK | Homemaker | Neurologist | 101 | |
| 61 | F | Mar 1998 | 2 | Suffolk | LI | Banker Ret. | Neurologist | 49 | |
| 61 | M | Dec 1996 | 2 | - | OH | Assembly Worker | 14-3-3 | 305 | |
| 61 | M | Oct 1997 | - | Kennebec | ME | - | Neurologist | 56 | |
| 61 | M | Sep 1998 | Computer Consultant | Neurologist | 24 | ||||
| 61 | M | Jun 1999 | 3 | Ector | MI | Minister | Mayo Clinic Dx | 222 | |
| 61 | M | Mar 2001 | - | Tallahassee | FL | Retire Airline Pilot | Autopsy | 317 | |
| 61 | M | Jan 1999 | 7 | Montgomery | GA | Electrical Maintenance | Autopsy | 346 | |
| 61 | F | Jan 1982 | - | - | KS | Bookeeper/Homemaker | Biopsy | 409 | |
| 61 | F | Sep 1974 | 6 | - | GA | Homemaker | - | 435 | |
| 62 | M | Jul 1998 | 15 | Penobscot | ME | Town Manager | MA General Dx,Autopsy | 172 | |
| 62 | M | Mar 1990 | 4 | Foster | ND | Farmer | Neurologist | 90 | |
| 62 | F | Apr 1986 | 6 | Barnes | ND | Homemaker | Autopsy | 247 | |
| 62 | F | Jul 1986 | 4 | Fayette | TX | Homemaker/Wife | Dx at John Hopkins | 251 | |
| 62 | M | 1990 | 12 | Evansville | IN | Computer business | Autopsy | 263 | |
| 62 | M | Jun 1996 | 18 | Riverside | CA | - | Scripps Clinic Dx | 278 | |
| 62 | M | Dec 1998 | 6 | Collier | FL | Gas Stn Owner/Oper | Autopsy in CA | 169 | |
| 62 | M | Apr 1997 | 12 | - | IN | Farmer | Neurologist | 39 | |
| 62 | M | May 1996 | 5 | Nova Scotia | Canada | Butcher | Cat Scan | 221 | |
| 62 | M | Oct 1994 | 2 | Tarrant | TX | Gov.Employee | Neurologist | 137 | |
| 62 | F | Jul 1999 | 3 | Richland | SC | Retail | Biopsy | 232 | |
| 62 | F | Oct 1999 | - | Newburyport | MA | - | Neurologist/14-3-3 | 337 | |
| 62 | M | Jan 2001 | 9 | Bell | TX | Ret.Army&Postal; Svc | Autopsy | 345 | |
| 62 | F | - | 2 | SanLuisObispo | CA | Tennis Pro | - | 417 | |
| 63 | M | Nov 1998 | 2 | Richmond | NY | - | Biopsy | 84 | |
| 63 | F | 1997 | - | Waterloo | IA | Slaughterhouse Worker | Neurologist Dx | 246 | |
| 63 | M | Apr 1989 | 2 | Lake | IN | Auto/Body Repai | Neurologist | 37 | |
| 63 | F | Dec 1997 | - | Galveston | TX | - | Autopsy | 122 | |
| 63 | M | Jan 1985 | 11 | - | CA | Carpenter | Neurologist-VA refused Biop | 293 | |
| 63 | M | May 1996 | 18 | Riverside | CA | Public Works Inspector | UCLA/Autopsy | 16 | |
| 63 | F | Aug 1999 | 2 | Merrimack | NH | Retired | Autopsy | 303 | |
| 63 | M | Feb 1994 | 3 | Sutter | CA | Ship Pilot | Neurologist | 17 | |
| 63 | M | 1994 | 3 | AnneArundel | MD | Electronic Technician | - | 421 | |
| 63 | M | Jul 2002 | 2.1 | Adams | CO | Mechanic | Unknown | 440 | |
| 63 | F | Aug 2001 | 3 | SanLuisObisp | CA | Tennis Pro | Autopsy | 447 | |
| 64 | M | Aug 1998 | 1 | Salt Lake | UT | - | Neurologist | 148 | |
| 64 | F | Apr 1997 | 12 | Hennepin | MN | Homemaker | Neurologist | 67 | |
| 64 | F | Pending | 13 | Contra Costa | CA | Retail | - | 179 | |
| 64 | M | Sep 1994 | 8 | San Francisco | CA | Electrical Designer | Neurologist | 19 | |
| 64 | F | Mar 1999 | - | Vancouver | WA | - | Neurologist Dx/biopsy | 208 | |
| 64 | F | Nov 1999 | 6 | Avoyelles | LA | Homemaker | Post Mortem biopsy | 308 | |
| 64 | M | Sep 1999 | 1 | Windsor | VT | Chemist/Retired | 14-3-3/biopsy | 282 | |
| 64 | M | Nov 1997 | 3 | Schenectady | NY | Engineer | Biopsy | 86 | |
| 64 | M | Mar 1997 | 12 | Davie | NC | - | Neurologist,sporadic | 88 | |
| 64 | M | May 1995 | 20 | Montgomery | OH | Minister | Autopsy | 91 | |
| 64 | M | Jul 1999 | 3 | New York | NY | Housing Administrator | Biopsy | 241 | |
| 64 | M | Apr 1979 | 4 | Milwaukee | WI | - | Neurologist Dx | 157 | |
| 64 | F | Oct 1989 | 12 | Cuyahoga | OH | Homemaker | - | 93 | |
| 64 | M | Oct 1997 | 3 | Muskogee | OK | St.Tax Commissioner | Neurologist Dx | 218 | |
| 64 | M | Jul 1989 | 7 | Lake | OH | Company Owner | Autopsy | 329 | |
| 64 | F | Dec 1996 | 10 | Renssalaer | NY | Housewife | Autopsy-Brain Dx | 382 | |
| 64 | M | Jul 2000 | 18 | - | NY | Dir. Environmental Oper. | Symptoms/EEG | 401 | |
| 64 | F | Jan 1993 | 18 | Adams | WI | Housewife | Autopsy | 448 | |
| 64 | M | Oct 1994 | 3 | Tarrant | TX | Government Employee | Brain Donated to NIH | 453 | |
| 65 | F | May 1996 | - | Montgomery | AL | - | Neurologist | 4 | |
| 65 | F | Nov 1998 | 0.8 | Tigard | OR | Homemaker | Neurologist | 105 | |
| 65 | M | Mar 1998 | - | Dade | FL | Meat Warehse Laborer | Autopsy,sporadic | 1 | |
| 65 | M | Jun 1987 | 3 | Ontario | Canada | Milright/Carpenter | Biopsy | 161 | |
| 65 | F | Feb 1997 | 3 | Montgomery | MD | Contract Specialist | Neurologist | 62 | |
| 65 | M | Sep 1999 | 6 | Kern | CA | Car Body Man | Biopsy | 257 | |
| 65 | F | Feb 1984 | Neurologist/Autopsy | 13 | |||||
| 65 | M | Nov 1993 | 6 | Mecklenburg | NC | Food broker | Biopsy | 268 | |
| 65 | M | Feb 1997 | 2 | Putnam | FL | Electrician | Neurologist | 29 | |
| 65 | M | Dec 1998 | 5 | Green | NY | Electrical Contractor | Neurologist | 82 | |
| 65 | M | Apr 1996 | - | Henderson | TX | Carpenter | Neurologist | 132 | |
| 65 | F | 1988 | 3 | Washington | RI | Homemaker | Neurologist | 114 | |
| 65 | M | Jun 1999 | 5 | Oklahoma | OK | Retired | Neurologist,inconclusive tests | 229 | |
| 65 | F | Pending | 3 | Ector | TX | Cafeteria Worker | EEG,MRI/Neurologist | 235 | |
| 65 | F | Feb 1998 | - | Harris | TX | - | Neurologist | 127 | |
| 65 | M | Nov 1998 | 2 | Highlands | FL | Coal Miner/State Hospital | Pending | 378 | |
| 66 | M | Aug 1998 | 8 | Kane | IL | - | Neurologist | 34 | |
| 66 | F | Jan 1999 | - | Shelby | TN | Homemaker | Biopsy | 189 | |
| 66 | F | 1985 | 8+ | Essex | MA | Nurse/Homemaker | Biopsy | 259 | |
| 66 | M | Jun 1997 | 12 | DeKalb | GA | Minister | Neurologists | 178 | |
| 66 | M | Aug 1999 | 2 | Arapahoe | CO | Electrical Contractor | NIH/14-3-3 | 276 | |
| 66 | M | Mar | Meat House worker | Autopsy | 285 | ||||
| 66 | F | Jul 1986 | 3 | Erie | NY | Homemaker | Neurologist | 81 | |
| 66 | M | Dec 1998 | 2 | Horry | SC | Retired/Sales | EEG/Spinal inc. | 242 | |
| 66 | M | Dec 1998 | 6 | Ocean | NJ | USAF Ret. | Spinal fluid/NIH | 170 | |
| 66 | F | Jun 1976 | 9 | Mercer | OH | Meat Cutter | Biopsy-Ohio State Univ. | 98 | |
| 66 | F | Pending | 2 | Boston | MA | - | Pending | 353 | |
| 66 | M | 1986 | 6 | - | WA | Retired | Dx | 402 | |
| 66 | M | Jul 2000 | 12 | - | TX | Sales | 14-3-3/DNA/Autopsy | 407 | |
| 66 | M | Oct 2001 | Painter/Mill Worker | Autopsy | 428 | ||||
| 66 | M | Feb 1993 | 2.5 | Barron | WI | Self Employed | Autopsy | 438 | |
| 67 | M | May 1999 | 3 | Wayne | MI | Manufacturers Rep. | 14-3-3 | 312 | |
| 67 | M | Aug 1999 | 2 | Monmouth | NJ | Self Employed | 14-3-3/EEG | 272 | |
| 67 | M | Feb 1998 | 6 | Baton Rouge | LA | Insurance Salesman | Neurologist | 53 | |
| 67 | M | Pending | 48 | Kent | DE | Jet Mechanic/Farmer | 3 EEGs | 296 | |
| 67 | F | 1981 | 11 | Westmoreland | PA | Homemaker | Autopsy | 206 | |
| 67 | F | May 1998 | 7 | New Hanover | NC | - | Neurologist | 89 | |
| 67 | F | Dec 1998 | 2 | Plymouth | MA | Homemaker | 14-3-3 & 15 Neurologists | 173 | |
| 67 | F | Apr 1999 | 1.5 | Homestead | FL | Homemaker/Gardener | EEG | 339 | |
| 67 | F | Oct 1999 | 4 | Calhoun | AL | Homemaker | Neurolgist | 361 | |
| 67 | M | Feb 1997 | 2 | Orlando | FL | Retired Attorney | CDC Brain biopsy | 371 | |
| 67 | M | Dec 1978 | 5 | Washburn | WI | Service Manager | Autopsy | 439 | |
| 68 | F | Jul 1999 | 6 | B.Colombia | Canada | Homemaker/Farmer | - | 182 | |
| 68 | F | Jan 1998 | 24 | Powder River | MT | Homemaker | Neurologist | 70 | |
| 68 | M | Pending | 3 | Suffolk | NY | Water Works Sup. | Biopsy | 207 | |
| 68 | M | Aug 1996 | 3 | Brazoria | TX | - | Neurologist | 116 | |
| 68 | F | Pending | 11 | Coutts,Alb. | Canada | Greenhouse manager | MRI,EKG,etc | 212 | |
| 68 | M | Jun 1998 | - | Philadelphia | PA | - | Neurologist | 111 | |
| 68 | M | Jan 1995 | 12 | - | WA | Homemaker | Autopsy | 226 | |
| 68 | M | Jul 1998 | 1 | Weber | UT | Apartment Manager | Neurologist | 149 | |
| 68 | F | Jan 1999 | 2 | Shreveport | LA | - | Biopsy | 168 | |
| 68 | M | Jul 1999 | 11 | Evansville | IN | Maintenance | Neurologist | 203 | |
| 68 | M | Jan 98 | 2 | Tarrant | TX | - | Neurologists | 138 | |
| 68 | F | Dec 1996 | - | Harris | TX | - | Neurologist | 126 | |
| 68 | M | Dec 2000 | 8 | Springfield | MO | Acctnt/Bass Pro Shop | Neurologist Dx | 355 | |
| 68 | F | Nov 1989 | 7 | Los Angeles | CA | Teacher | Brain biopsy | 364 | |
| 68 | M | - | 3 | N.Little Rock | AR | - | - | 452 | |
| 68 | F | Apr 1999 | 1 | Homestead | FL | Housewife | Diagnosed as CJD | 450 | |
| 69 | F | Sep 1994 | 4 | Belmont | OH | Nurse | Autopsy | 92 | |
| 69 | F | Aug 1998 | 5 | Solano | CA | Civil Service Ret. | Neurologist | 20 | |
| 69 | M | Mar 1999 | 3 | - | OR | - | Autopsy | 300 | |
| 69 | F | Nov 1977 | - | Cuyahoga | OH | Hospital Clerk | Brain biopsy | 311 | |
| 69 | M | Oct 1994 | 24 | Nassau | LI | Auto Repair business | Neurologist | 52 | |
| 69 | M | Jan 1996 | 4 | Suffolk | LI | Factory Manager | Neurologist | 47 | |
| 69 | M | Jul 1998 | 3 | Virginia Beach | VA | Retired | EEG/Neurologist | 57 | |
| 69 | F | Dec 1997 | 3 | Oklahoma | OK | - | Neurologist | 102 | |
| 69 | M | - | - | Gauteng | So. Africa | Farmer | EEG/Symptoms | 336 | |
| 69 | F | Feb 1995 | - | Orange | FL | Homemaker | Brain biopsy | 349 | |
| 69 | M | Nov 1998 | 3 | St. Louis | MO | Retired | 14-3-3/Autopsy | 408 | |
| 69 | M | Nov 1997 | - | Akron | AL | Retired Postmaster | Autopsy | 315 | |
| 69 | F | Aug 2001 | 2 | Madison | IN | Wife, Mother, Grandmother | - | 423 | |
| 69 | F | Jun 2002 | 2.5 | Albany | NY | Retired Office Worker | Symptoms/EEG/Autopsy | 446 | |
| 70 | M | Oct 1997 | - | Gregg | TX | - | Neurologist | 125 | |
| 70 | F | Nov 1997 | - | Allen | IN | - | Neurologist | 36 | |
| 70 | F | Pending | 0.8 | Allamakee | IA | Retired | Biopsy/St.Mary's/MN | 258 | |
| 70 | M | May 1992 | - | Dallas | TX | - | Neurologist | 119 | |
| 70 | M | Feb 1998 | 10 | Anne Arundel | MD | Garden Center Owner | Autopsy/John Hopkins | 61 | |
| 70 | F | Sep 1988 | 5.5 | Hartford | CT | Laundress | Neurolgist | 174 | |
| 70 | M | Mar 1998 | - | Ocean | NJ | - | Neurologist | 78 | |
| 70 | F | May 1996 | - | Payne | OK | - | Neurologist | 103 | |
| 70 | F | Nov 1997 | 36 | Charlottesville | VA | Housewife | Brain Biopsy | 316 | |
| 70 | F | Feb 2000 | 24 | Bladen | NC | - | Duke Medical Ctr | 332 | |
| 70 | F | Feb 1999 | 7 | - | NY | Ret.Owner Travel Agency | EEG | 379 | |
| 70 | F | Feb 1999 | - | Endicott | NY | - | 14-3-3/EEG/NIH | 380 | |
| 70 | F | Jan 1998 | 2 | Charlottesville | VA | Housewife | Brain biopsy at UVA IN | 383 | |
| 70 | F | Nov 2000 | 1.5 | - | MA | Kitchen Aide | - | 392 | |
| 70 | F | Aug 2001 | 2.5 | Montgomery | PA | School Bus Aide | Neurologist | 431 | |
| 70 | F | Oct 2001 | 6 | - | VA | Retired Retail Worker | 14-3-3, EEG, Autopsy | 441 | |
| 71 | M | Sep 1999 | 5 | Bartow | GA | Retired | EEG/14-3-3/biopsy | 273 | |
| 71 | M | Aug 1999 | 9 | Henderson | TX | - | - | 265 | |
| 71 | M | May 1998 | 3 | Hardin | IA | Realtor/Abstractor | Neurologist | 40 | |
| 71 | M | Jan 1999 | 7 | Garrett | MD | Army -Ret. | 14-3-3/NIH,sporadic | 185 | |
| 71 | M | Dec 1998 | 1 | Rutland | VT | Utilities Lineman | Neurologist | 150 | |
| 71 | M | Aug 1998 | 3 | Woodstock | VT | Lab Tech | Neurologists | 175 | |
| 71 | M | Mar 1995 | 9 | Los Angeles | CA | Procurement | Autopsy | 271 | |
| 71 | M | Aug 1994 | 24 | Allegheny | PA | Executive Ret | Autopsy | 106 | |
| 71 | F | Jul 1998 | - | Nova Scotia | Canada | - | - | 187 | |
| 71 | F | Pending | 6 | Grayson | VA | Gov.Work Ret. | Neurologist | 163 | |
| 71 | M | Nov 1998 | 5 | Maricopa | AZ | Retired Business Owner | Biopsy | 233 | |
| 71 | F | Mar 2000 | 1 | - | - | - | Diagnosed as CJD 3/17/00 | 330 | |
| 71 | F | Mar 1994 | 5 | Ramsey | MN | Homemaker | EEG | 375 | |
| 71 | F | Jul 1998 | 8 | Levy | FL | Sheriffs Secretary | Autopsy | 422 | |
| 71 | F | Jul 2002 | 10 | Albany | NY | Retired Computer Operator | Autopsy Results Pending | 430 | |
| 72 | F | 1996 | 3 | Staunton | VA | - | Biopsy | 205 | |
| 72 | F | Sep 1995 | 2 | Columbia | MO | Nurse/Instructor | EEG/Neurologist Dx | 281 | |
| 72 | F | May 1990 | 10 | Lake | FL | US Gov.Ret. | Biopsy/NIH,FFI or GSS | 28 | |
| 72 | F | Pending | 12 | - | MO | Registered Nurse | EEG/Cat Scan | 225 | |
| 72 | M | 1999 | - | Neurolgists | 177 | ||||
| 72 | F | Sep 1997 | 2 | Volusia | FL | Travel Agent | Neurologist | 30 | |
| 72 | M | Jun 1993 | 2 | Norfolk | VA | Ret.Military | MRR;MIR;EEG;EKG | 211 | |
| 72 | F | Jul 1991 | 3 | Ocean | NJ | Registered Nurse | Neurologist | 79 | |
| 72 | F | Aug 1997 | 3 | Dupage | IL | Retired/General Labor | Autopsy/Dr.Ghetti | 181 | |
| 72 | M | Nov 1993 | 5 | Pulaski | KY | Electrical Engineer | Dx 14-3-3 /Dr Dx | 45 | |
| 72 | F | Aug 1994 | 10 | Philadelphia | PA | Homemaker | Biopsy | 109 | |
| 72 | F | Jan 1995 | 4 | Detroit | MI | - | Biopsy | 183 | |
| 72 | M | Dec 1999 | 2 | Hamilton | TN | Retired Hydrologist | Autopsy | 331 | |
| 72 | F | Oct 2000 | 1.5 | - | FL | Telephone Operator | EEG-Textbook Classic | 396 | |
| 72 | F | Aug 2000 | 5 | Ontario | Canada | Retired | - | 416 | |
| 72 | F | May 1998 | 36 | Tuscarawas | OH | Homemaker | Autopsy | 436 | |
| 73 | M | Nov 1998 | 2 | King | WA | Fish Pathologist | Neurologist/NIH 14-3-3 | 201 | |
| 73 | F | Pending | 3 | Harris | TX | Writer/Artist/Pianist | EEG/MRI/14-3-3 | 283 | |
| 73 | M | Feb 1999 | 3 | Marinette | WI | Farmer | EEG 2x at clinic | 195 | |
| 73 | F | Jul 1999 | 2 | Los Angeles | CA | Retired | EEG/14-3-3 | 275 | |
| 73 | F | Aug 1999 | 2 | Manitoba | Canada | Homemaker | Neurologis Dx | 234 | |
| 73 | M | Jan | Retired Engineer | Probable CJD | 333 | ||||
| 73 | F | Mar 2001 | 3 | Johnson | KS | Homemaker, Seamstress | Biopsy | 358 | |
| 73 | F | Oct 1996 | 4 | Jackson | MS | Housewife | Spinal Tap | 366 | |
| 73 | F | Jan 2001 | 12 | Queens | NY | Homemaker | Neur/14-3-3/NIH/Autopsy | 381 | |
| 73 | F | Oct 2000 | 1 | Garden | KS | Housewife | Brain biopsy/Autopsy | 384 | |
| 73 | M | Apr 2000 | 6 | - | MA | Supt.of Schools | Biopsy/Autopsy | 386 | |
| 73 | F | May 1993 | - | Carlisle | PA | Secretary | Autopsy | 391 | |
| 73 | F | Aug 2000 | 3 | Nassau | NY | Retired | Biopsy/14-3-3 | 394 | |
| 73 | F | Sep 2001 | 2 | Allegheny | PA | Maintenance Worker | 14-3-3 at NIH | 427 | |
| 73 | F | Aug 2002 | - | Gogebic | MI | Housewife | Doctor Dx | 443 | |
| 74 | F | Jul 1998 | 1 | Placer | CA | Homemaker | Neurologist | 15 | |
| 74 | M | Pending | 9 | Mississippi | AR | Minister | Baptist Hospital,Memphis Dx | 11 | |
| 74 | F | Sep 1998 | 4 | Bucks | PA | Homemaker | Neurologist Dx | 230 | |
| 74 | M | Aug 1999 | 2 | Woonsocket | RI | Phone Repair | 14-3-3/ Waiting Autopsy | 279 | |
| 74 | F | Dec 1998 | 3 | Princeton | NJ | - | Neurologist | 164 | |
| 74 | M | Mar 1997 | 6 | Clinton | IA | Plummer Ret. | Autopsy/Mayo Clinic Dx | 41 | |
| 74 | M | May 1997 | 2 | Denton | TX | Homebuilder | Neurologist | 120 | |
| 74 | M | Oct 1998 | - | Cuyahoga | OH | Printer | Autopsy (#A98-258N) | 322 | |
| 74 | M | Oct 1985 | 98 | Worcester | MA | Electrican/Driver/Farm | Autopsy | 359 | |
| 74 | F | Oct 2000 | 3 | Delta | CO | Retired Baker | 14-3-3 | 390 | |
| 74 | F | Nov | Homemaker | MRI/Neurologist | 395 | ||||
| 75 | F | Nov 1998 | 5 | Brevard | FL | - | Neurologist | 26 | |
| 75 | M | Dec 1997 | 36 | Jackson | MO | USAF/Repairman | Autopsy | 250 | |
| 75 | F | Pending | 8 | Galveston | TX | Homemaker | EEG/MRI/Spinal | 220 | |
| 75 | F | Aug 1993 | - | Maricopa | AZ | Retired | Biopsy | 223 | |
| 75 | F | Nov 1999 | Cashier/Housewife | EEG/Neurologst | 399 | ||||
| 75 | F | Pending | 11 | Drenthe | Netherlands | Housewife | EEG & Spinal Tap | 445 | |
| 75 | M | Sep 2000 | 3 | Knott | KY | Retired | Diag. U. Of Kentucky | 454 | |
| 76 | F | Feb 1996 | 2 | Barnstable | MA | Author/Homemaker | Neurologist | 63 | |
| 76 | M | Sep 1994 | 18 | Leelanau | MI | Accountant/Retired | EEG/Symptoms | 245 | |
| 76 | F | Jan 1999 | 6 | Middlesex | NJ | Homemaker | Autopsy | 248 | |
| 76 | M | Aug 1998 | 3 | Lehigh | PA | Milwright | EEG/Doctor Dx | 107 | |
| 76 | M | Nov 1995 | 4 | Galveston | TX | Butcher | Neurologist | 123 | |
| 76 | F | Feb 1997 | 2 | - | MA | - | 14-3-3 | 287 | |
| 76 | F | Mar 1998 | 6 | Harris | TX | - | Neurologist | 128 | |
| 76 | F | Apr 1999 | 3 | Walker Co. | GA | Homemaker | Spinal Tap | 210 | |
| 76 | M | Nov 1991 | - | Newport News | VA | Welder | Neurologist/Dx | 144 | |
| 76 | M | Pending | 5 | Clinton | MI | Retired | 14-3-3 | 224 | |
| 76 | F | Oct 2000 | - | Monterey | CA | Retired shed worker | Stanford Neurologits (3) | 370 | |
| 77 | F | Jul 1994 | 6 | Red River | TX | Librarian | Neurologist | 136 | |
| 77 | M | Nov 1997 | 4 | Cumberland | KY | Factory Worker Ret. | Neurologist | 43 | |
| 77 | M | Sep 1992 | 18 | Harris | TX | - | Neurologist | 129 | |
| 77 | M | Feb 1998 | 2 | Kanawha | WV | Pipefitter | Neurologist Dx | 192 | |
| 77 | F | Feb 1998 | 5 | Sonoma | CA | Homemaker | Neurologist | 21 | |
| 77 | M | Sep 1985 | 4 | Hampden | MA | Factory Worker | Autopsy | 326 | |
| 77 | M | Mar | Retired Office Worker | Pending | 360 | ||||
| 77 | F | Jan 2001 | 4 | Lucas | OH | Housewife | Autopsy | 420 | |
| 77 | M | Jul 1998 | 12 | Cook | IL | Retired Pipefitter | - | 424 | |
| 78 | F | Sep 1999 | 3 | Alameda | CA | - | - | 260 | |
| 78 | F | - | 4 | Middlesex | NJ | Crossing Guard | Neurologist | 75 | |
| 78 | F | Sep 1998 | 6 | Denton | TX | Seamstress | Neurologist | 121 | |
| 78 | M | Oct 1998 | 1 | Winona | MN | Retired | Neurologist | 68 | |
| 78 | M | Pending | 1 | Palo Alto | IA | Farmer | 14-3-3 | 227 | |
| 78 | F | Dec 1998 | 2 | Bristol | MA | Homemaker | MA General Hosp Dx | 64 | |
| 78 | M | Jun 1998 | 6 | Morgan | CO | Carpenter Ret. | Autopsy/biopsy | 23 | |
| 78 | F | Sep 1998 | 4 | Virginia Beach | VA | Teacher Ret. | Neurologist | 145 | |
| 78 | M | 1996 | 12 | Dade | FL | - | Dr Gold/NIH | 27 | |
| 78 | F | May 1996 | 24 | Tuscarawas | OH | Homemaker | Autopsy | 318 | |
| 78 | M | Feb | Retired | Inconclusive Biopsy | 320 | ||||
| 78 | F | Jan 1990 | 6 | Slidell | LA | - | Death Certificate Lists CJD | 363 | |
| 78 | M | Oct 1999 | 1 | St. Louis | MO | - | Neurologist Dx | 393 | |
| 79 | M | Apr 1983 | 60 | Manhattan | NY | Famous Choreographer | Autopsy | 196 | |
| 79 | M | Jan 1998 | 2 | Trumball | OH | Retired | EEG/Neurologist Dx | 295 | |
| 79 | M | Jan 1998 | 3 | Mahonig | OH | Supervisor Ret. | Neurologist | 97 | |
| 79 | M | Jan 1999 | 2 | Orange | CA | Airline Pilot/Retired | 14-3-3/Neurologists Dx | 289 | |
| 80 | F | Mar 1997 | 4 | Cook | IL | Homemaker | Neurologist | 31 | |
| 80 | F | Jun 2000 | 8 | - | NE | Grandmother | - | 357 | |
| 80 | F | - | - | Pittsburgh | PA | Neurologists Dx | 367 | ||
| 81 | M | Nov 1995 | 12 | Pima | AZ | - | Neurologist | 10 | |
| 81 | M | Aug 2000 | - | Collier | FL | - | Autopsy | 373 | |
| 82 | F | Jan 1999 | - | - | NE | - | Spinal Fluid,sporadic | 171 | |
| 82 | F | 1999 | - | Richmond | VA | Homemaker/Gardner | Neurologist | 204 | |
| 82 | M | Aug 1998 | 9 | Sao Paulo | Brazil | Lawyer | 4 Neurologists | 342 | |
| 83 | F | Dec 1988 | 8 | Fredericksburg | VA | Homemaker | Neurologist Dx | 143 | |
| 83 | F | Oct 1999 | 5 | Steuben | NY | Homemaker | Autopsy | 334 | |
| 83 | M | Pending | - | - | NJ | - | EEG | 338 | |
| 83 | F | - | - | Philadelphia | PA | Homemaker | Neurologist Dx | 404 | |
| 85 | F | 1986 | - | Clearwater | FL | Teacher/Housewife | Autopsy | 400 | |
| 87 | F | Jul 1999 | 2 | - | MA | - | Neurologists Dx | 298 |
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Terry S. Singeltary Sr. 2026
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