Wednesday, November 12, 2014

National Creutzfeldt-Jakob Disease Awareness Week November 10-16

this week, and today especially, is National Creutzfeldt-Jakob Disease Awareness Week. but for myself and some others, everyday is National Creutzfeldt-Jakob Disease Awareness day for us, because we do this every day. I just made a promise, never forget, and never let them forget. ...tss

 

From: TSS Subject: National Creutzfeldt-Jakob Disease Awareness Week Date: November 6, 2005 at 6:22 pm PST

 

News Released: November 06, 2005 National Creutzfeldt-Jakob Disease Awareness Week

 

(PRLEAP.COM) "The purpose for National Creutzfeldt-Jakob Disease Awareness Week is to put a much-needed spotlight on this fatal disease," remarked Christy Brom, founder of CJD Aware!, a non-profit, information organization based in New Orleans. The organization was founded in the spring of 2002 after the death of Ms. Brom’s mother, Sara, from the sporadic form of Creutzfeldt-Jakob disease. Sara Brom was 66 years old when she died on November 12, 2000. "In 2002, organizations worldwide were invited by the CJD Support Network in Great Britain to join them in recognizing November 12 as International CJD Awareness Day," added Ms. Brom. "Our participation in this event began with support from Great Britain. Then in October, 2002, CJD Aware! decided to send a letter to the Governor of North Carolina requesting a signed CJD proclamation proclaiming November 10-16 as ‘Creutzfeldt-Jakob Disease Awareness Week’ in the state of North Carolina. We were very pleased when we received the proclamation from Governor Easley. Then one of my Board members, George B.K. Carr, Sr., suggested that we pursue a goal of CJD proclamations from the Governors in all 50-states. Since we began this campaign in 2002, we’re over half-way to our goal of all 50-states." "This cause is very near and dear to my heart," remarked Mr. Carr. "My wife, Bay, and I fully support Christy and her organization, CJD Aware!. Bay and I have known the Brom family for over 30-years, and were simply devastated when Sara died from this horrendous disease. It destroyed Sara’s intellect, her wonderful creativity and personality. We will do everything we can to get the word out about CJD, and we feel that ‘National CJD Awareness Week’ is one way of accomplishing this. That’s why we decided to send letters out to Governors of each state nationwide, in addition to the state of North Carolina. We’ve gotten a very positive feedback on this national campaign." CJD Aware! has made great strides since its inception in the spring of 2002. "This disease has no boundaries as far as location, race or age," added Ms. Brom. "We are here to assist any individual or organization who wishes information about Creutzfeldt-Jakob disease. The disease has been around since the 1920’s and, unfortunately, shows no sign of disappearing."

 


 

TSS

 


 


 

From: Terry S. Singeltary Sr. Sent: Monday, November 03, 2014 4:39 PM To: BSE-L@LISTS.AEGEE.ORG Subject: Re: [BSE-L] USA CJD TSE PRION UNIT, TEXAS, SURVEILLANCE UPDATE NOVEMBER 2014

 

if you notice, if you add up the vpspr 50 cases and the sporadic FFI 21 cases, and then add to the total sporadic cjd cases of 2660, this is where the total of 2731 sporadic cases come from...seems they are lumping them all together as total sporadic cjd cases, and leaving the sporadic cjd text completely out of the picture now. smoooth. covering all bases I presume, and they moved the goal post in the middle of the game, again. niice...we all didn't fall off a shrimp boat yesterday$$$ *** these kind always are interesting for me, those type determination pending cases, year after year ;

 

***6 Includes 11 cases in which the diagnosis is pending, and 19 inconclusive cases;

 

***7 Includes 12 (11 from 2014) cases with type determination pending in which the diagnosis of vCJD has been excluded. ...

 


 

CONFIRMED HUMAN BSE AKA MAD COW DISEASE vCJD TEXAS USA

 

Monday, June 02, 2014 Confirmed Variant CJD Case in Texas

 


 

SO, 4 months after the fact and still no word on this case. no information what so ever. the silence is deafening $$$

 

Monday, November 3, 2014

 

The prion protein protease sensitivity, stability and seeding activity in variably protease sensitive prionopathy brain tissue suggests molecular overlaps with sporadic Creutzfeldt-Jakob disease

 


 


 

Tuesday, November 04, 2014

 

Towards an Age-Dependent Transmission Model of Acquired and Sporadic Creutzfeldt-Jakob Disease

 


 

PLEASE REMEMBER ;

 

The Akron, Ohio-based CJD Foundation said the Center for Disease Control revised that number in October of 2004 to about one in 9,000 CJD cases per year in the population group age 55 and older.

 

HAVE YOU GOT YOUR CJD QUESTIONNAIRE ASKING REAL QUESTIONS PERTAINING TO ROUTE AND SOURCE OF THE TSE AGENT THAT KILLED YOUR LOVED ONE ???

 

if not, why not...

 

Friday, November 30, 2007

 

CJD QUESTIONNAIRE USA CWRU AND CJD FOUNDATION

 


 


 

Tuesday, November 04, 2014

 

The pathological and molecular but not clinical phenotypes are maintained after second passage of experimental atypical bovine spongiform encephalopathy in cattle

 


 

Tuesday, November 04, 2014

 

Six-year follow-up of a point-source exposure to CWD contaminated venison in an Upstate New York community: risk behaviours and health outcomes 2005–2011

 


 

Self-Propagative Replication of Ab Oligomers Suggests Potential Transmissibility in Alzheimer Disease

 

Received July 24, 2014; Accepted September 16, 2014; Published November 3, 2014

 


 

Singeltary comment ;

 


 

 kind regards, terry

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