National Creutzfeldt-Jakob Disease Awareness Week November 10-16
this week, and today especially, is National Creutzfeldt-Jakob Disease
Awareness Week. but for myself and some others, everyday is National
Creutzfeldt-Jakob Disease Awareness day for us, because we do this every day. I
just made a promise, never forget, and never let them forget. ...tss
From: TSS Subject: National Creutzfeldt-Jakob Disease Awareness Week Date:
November 6, 2005 at 6:22 pm PST
News Released: November 06, 2005 National Creutzfeldt-Jakob Disease
Awareness Week
(PRLEAP.COM) "The purpose for National Creutzfeldt-Jakob Disease Awareness
Week is to put a much-needed spotlight on this fatal disease," remarked Christy
Brom, founder of CJD Aware!, a non-profit, information organization based in New
Orleans. The organization was founded in the spring of 2002 after the death of
Ms. Brom’s mother, Sara, from the sporadic form of Creutzfeldt-Jakob disease.
Sara Brom was 66 years old when she died on November 12, 2000. "In 2002,
organizations worldwide were invited by the CJD Support Network in Great Britain
to join them in recognizing November 12 as International CJD Awareness Day,"
added Ms. Brom. "Our participation in this event began with support from Great
Britain. Then in October, 2002, CJD Aware! decided to send a letter to the
Governor of North Carolina requesting a signed CJD proclamation proclaiming
November 10-16 as ‘Creutzfeldt-Jakob Disease Awareness Week’ in the state of
North Carolina. We were very pleased when we received the proclamation from
Governor Easley. Then one of my Board members, George B.K. Carr, Sr., suggested
that we pursue a goal of CJD proclamations from the Governors in all 50-states.
Since we began this campaign in 2002, we’re over half-way to our goal of all
50-states." "This cause is very near and dear to my heart," remarked Mr. Carr.
"My wife, Bay, and I fully support Christy and her organization, CJD Aware!. Bay
and I have known the Brom family for over 30-years, and were simply devastated
when Sara died from this horrendous disease. It destroyed Sara’s intellect, her
wonderful creativity and personality. We will do everything we can to get the
word out about CJD, and we feel that ‘National CJD Awareness Week’ is one way of
accomplishing this. That’s why we decided to send letters out to Governors of
each state nationwide, in addition to the state of North Carolina. We’ve gotten
a very positive feedback on this national campaign." CJD Aware! has made great
strides since its inception in the spring of 2002. "This disease has no
boundaries as far as location, race or age," added Ms. Brom. "We are here to
assist any individual or organization who wishes information about
Creutzfeldt-Jakob disease. The disease has been around since the 1920’s and,
unfortunately, shows no sign of disappearing."
TSS
From: Terry S. Singeltary Sr. Sent: Monday, November 03, 2014 4:39 PM To:
BSE-L@LISTS.AEGEE.ORG Subject: Re: [BSE-L] USA CJD TSE PRION UNIT, TEXAS,
SURVEILLANCE UPDATE NOVEMBER 2014
if you notice, if you add up the vpspr 50 cases and the sporadic FFI 21
cases, and then add to the total sporadic cjd cases of 2660, this is where the
total of 2731 sporadic cases come from...seems they are lumping them all
together as total sporadic cjd cases, and leaving the sporadic cjd text
completely out of the picture now. smoooth. covering all bases I presume, and
they moved the goal post in the middle of the game, again. niice...we all didn't
fall off a shrimp boat yesterday$$$ *** these kind always are interesting for
me, those type determination pending cases, year after year ;
***6 Includes 11 cases in which the diagnosis is pending, and 19
inconclusive cases;
***7 Includes 12 (11 from 2014) cases with type determination pending in
which the diagnosis of vCJD has been excluded. ...
CONFIRMED HUMAN BSE AKA MAD COW DISEASE vCJD TEXAS USA
Monday, June 02, 2014 Confirmed Variant CJD Case in Texas
SO, 4 months after the fact and still no word on this case. no information
what so ever. the silence is deafening $$$
Monday, November 3, 2014
The prion protein protease sensitivity, stability and seeding activity in
variably protease sensitive prionopathy brain tissue suggests molecular overlaps
with sporadic Creutzfeldt-Jakob disease
Tuesday, November 04, 2014
Towards an Age-Dependent Transmission Model of Acquired and Sporadic
Creutzfeldt-Jakob Disease
PLEASE REMEMBER ;
The Akron, Ohio-based CJD Foundation said the Center for Disease Control
revised that number in October of 2004 to about one in 9,000 CJD cases per year
in the population group age 55 and older.
HAVE YOU GOT YOUR CJD QUESTIONNAIRE ASKING REAL QUESTIONS PERTAINING TO
ROUTE AND SOURCE OF THE TSE AGENT THAT KILLED YOUR LOVED ONE ???
if not, why not...
Friday, November 30, 2007
CJD QUESTIONNAIRE USA CWRU AND CJD FOUNDATION
Tuesday, November 04, 2014
The pathological and molecular but not clinical phenotypes are maintained
after second passage of experimental atypical bovine spongiform encephalopathy
in cattle
Tuesday, November 04, 2014
Six-year follow-up of a point-source exposure to CWD contaminated venison
in an Upstate New York community: risk behaviours and health outcomes 2005–2011
Self-Propagative Replication of Ab Oligomers Suggests Potential
Transmissibility in Alzheimer Disease
Received July 24, 2014; Accepted September 16, 2014; Published November 3,
2014
Singeltary comment ;
kind regards, terry
posted by Terry S. Singeltary Sr. at
11:01 AM
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